CHEO is announcing the launch of ChangingYourLens.ca, a website aimed at helping care providers and organizations to better support and understand families caring for ill children.
What started as an idea from families of children and youth with complex medical needs is now a program co-designed and co-led by parents, and run by CHEO and Pinecrest-Queensway Community Health Centre to help families cope with the unique challenges of their lives, including parent-to-parent support.
“Families of children with complex medical needs face tremendous social, emotional and economic stresses,” said Chantal Krantz, manager of Connected Care at CHEO. “It’s unfathomable for most people just how taxing it is. The many specialists. The extraordinary costs. Being on call 24/7. Saving your child’s life again and again. Coordinating services in a fragmented system. Keeping things as normal as possible for the whole family. Just to name a very few.”
ChangingYourLens.ca has five sections meant for employers, care providers and organizations to help address the needs of families. The sections include quick guides, resources such as documentaries about family experiences. It also includes information from hospitals, governments and pediatric centres across the country. It also includes categories that revolve around everyday challenges families may face, such as:
- Supporting emotional and physical health for parents
- Financial and employment
- Reducing social isolation
- Respite for parents
- Build your program
“ChangingYourLens.ca is an excellent example of the importance of listening to parents, and working in partnership with them and other care organizations,” says Alex Munter, CHEO’s president and CEO. “The health-care system has to make it easier, faster and better for families. Kids have unique health-care challenges, especially those with complex needs, so today’s announcement is definitely a step in the right direction.”